Caregiver Support
Resources for caregivers in the Chicago area
Finding support as a caregiver for adults and children with disabilities can be crucial for maintaining physical and emotional well-being. In Chicago, a variety of resources are available to assist caregivers in navigating the challenges they may encounter. From respite care services and support groups to informational workshops and advocacy organizations, caregivers can access the tools and assistance they need to provide the best possible care for their loved ones. Additionally, tailored programs for children with disabilities offer specialized educational, recreational, and therapeutic activities, promoting their growth and development while providing much-needed respite for caregivers. With a network of dedicated professionals and organizations, Chicago is committed to supporting caregivers and enhancing the quality of life for individuals with disabilities and their families.
Educational Advocacy & Consulting: (https://educationaladvocacy-consulting.com/)
Overview: Their mission is to empower both families and children (of all ages) to receive all their rights including identification, eligibility for an IEP or Section 504, appropriate goals, accommodations, services, and placement to improve their ability to have appropriate access to their education.
La Rabida Children Hospital: (https://larabida.org/)
Overview: La Rabida Children’s Hospital mission is simple: they are dedicated to maintaining and improving the quality of life for each of their patients with complex conditions, disabilities, and chronic illness. The path to completing this mission, however, is often complicated. Patients regularly require extensive care coordination or assistance in managing lifelong conditions.
Easterseals Metropolitan Chicago: (https://www.easterseals.com/chicago/)
Overview: Easterseals provides a range of services for individuals with disabilities and their families, including early intervention, therapy, and employment services.
Access Living: (https://www.accessliving.org/)
Overview: Access Living is a center for independent living that offers various programs and services to support people with disabilities, including advocacy, housing assistance, and community engagement.
Family Resource Center on Disabilities (FRCD): (https://frcd.org/)
Overview: FRCD offers support, information, and training for families of children with disabilities, including educational advocacy services.
Illinois Assistive Technology Program (IATP) – Chicago Satellite Office: (https://www.iltech.org/)
Overview: IATP provides assistive technology resources and services to enhance the independence of individuals with disabilities.
Thresholds: (https://www.thresholds.org/)
Overview: Thresholds provide mental health services, including support for individuals with mental illnesses and their families.
Chicago Park District – Special Recreation: (https://www.chicagoparkdistrict.com/)
Overview: The Chicago Park District offers special recreation programs and events for individuals with disabilities, providing recreational opportunities and social engagement.
Chicago Department of Family and Support Services (DFSS): (https://www.chicago.gov/city/en/depts/fss.html)
Overview: DFSS provides a variety of social services, and their website may have information on programs and resources for caregivers.
Illinois Department of Human Services (IDHS): (https://www.dhs.state.il.us/)
Overview: IDHS provides a wide range of social services, including programs for individuals with disabilities and their caregivers. Services cover areas such as healthcare, mental health, and economic assistance.
Social Security Administration (SSA): The United States Social Security Administration | SSA
Overview: The Social Security Administration (SSA) is a U.S. government agency that manages and administers social insurance programs. The primary focus is on providing financial support to eligible individuals and their families.
GiGi’s Playhouse Chicago: https://gigisplayhouse.org/chicago/
Overview: GiGi’s Playhouse is a nonprofit organization that provides free educational, therapeutic, and career development programs for individuals with Down syndrome of all ages. Their programs focus on literacy, math, fine and gross motor skills, social skills, and job training. GiGi’s Playhouse Chicago offers a supportive and inclusive environment where individuals with Down syndrome can learn, grow, and achieve their potential.
National Association for Down Syndrome (NADS): https://www.nads.org/
Overview: The National Association for Down Syndrome (NADS) is a nonprofit organization that provides support, information, and resources to individuals with Down syndrome and their families. NADS offers parent support groups, educational workshops, social events, and advocacy efforts to promote the rights and inclusion of individuals with Down syndrome. They also provide resources for healthcare professionals, educators, and community members to increase awareness and understanding of Down syndrome.
Access Living: (https://www.accessliving.org/)
Overview: Access Living is a leading organization dedicated to supporting people with disabilities. They offer a variety of services, including independent living skills training, peer support, advocacy, and assistance with transitioning out of nursing homes. They also provide resources on housing, employment, and education for individuals with disabilities.
The Arc of Illinois: (https://www.thearcofil.org/)
Overview: The Arc of Illinois advocates for people with intellectual and developmental disabilities. They offer support through family training, individual advocacy, and public policy initiatives. The Arc of Illinois also provides resources and information on various topics such as early intervention, special education, and community living.
Mayor’s Office for People with Disabilities (MOPD): (https://www.chicago.gov/city/en/depts/mopd.html)
Overview: The Mayor’s Office for People with Disabilities in Chicago provides a range of services to improve the quality of life for people with disabilities. Their services include employment training and placement, housing assistance, and information on accessible transportation. MOPD also works on policy development and enforcement of disability rights laws.
UIC Division of Specialized Care for Children: Home – UIC Specialized Care for Children
Overview: The UIC Division of Specialized Care for Children (DSCC) provides care coordination and financial assistance to children with special health care needs across Illinois. They help families access medical services, equipment, and resources to improve their children’s quality of life. DSCC works closely with families, healthcare providers, and schools to develop and manage comprehensive care plans.
Greater Chicago Food Depository: (https://www.chicagosfoodbank.org)
Overview: The Greater Chicago Food Depository is a nonprofit organization that provides food assistance to people in need across Cook County. They partner with a network of food pantries, soup kitchens, and shelters to distribute food. They also help, such as helping people apply for SNAP (food stamps).
The Salvation Army Metropolitan Division: (https://centralusa.salvationarmy.org/metro)
Overview: The Salvation Army offers a range of services, including emergency assistance with food, shelter, and utilities. They provide housing services, disaster relief, and programs that assist with rent, utility bills, and other basic needs. They also distribute diapers through their Family Services program.
Catholic Charities of the Archdiocese of Chicago: (https://www.catholiccharities.net)
Overview: Catholic Charities provides extensive support services, including emergency food assistance, rental and utility assistance, diaper distribution, and housing programs for individuals and families facing homelessness. They also operate shelters and transitional housing programs.
The Housing Authority of Cook County (HACC): (https://thehacc.org)
Overview: HACC provides affordable housing options and rental assistance programs for low-income residents of Cook County. They offer public housing, Section 8 vouchers, and supportive services to help residents maintain stable housing.
Other Caregiver Support
National Respite Locator Service: (https://archrespite.org/respitelocator)
The Arc: (https://thearc.org/)
Overview: The Arc provides resources and advocacy for individuals with intellectual and developmental disabilities and their families.
Family Caregiver Alliance: (https://www.caregiver.org/)
Overview: FCA offers support and resources for family caregivers, including those caring for individuals with disabilities.
Autism Speaks: (https://www.autismspeaks.org/)
Overview: Autism Speaks provides information, advocacy, and resources for individuals and families affected by autism.
Special Needs Alliance: (https://www.specialneedsalliance.org/)
Overview: Special Needs Alliance offers legal and financial resources for individuals with disabilities and their families.
National Alliance on Mental Illness (NAMI): (https://www.nami.org/Support-Education/Support-Groups/NAMI-Family-Support-Group)
Overview: NAMI’s Family Support Group provides support and resources for families of individuals with mental health conditions.
Easterseals: (https://www.easterseals.com/)
Overview: Easterseals offers services, advocacy, and support for individuals with disabilities and their families.
Exceptional Parent Magazine: (https://www.eparent.com/)
Overview: Exceptional Parent Magazine provides information and resources for parents and caregivers of individuals with disabilities.
National Down Syndrome Society (NDSS): (https://www.ndss.org/)
Overview: NDSS provides resources, support, and advocacy for individuals with Down syndrome and their families.
Parent to Parent USA: (https://www.p2pusa.org/)
Overview: Parent to Parent USA connects parents of individuals with disabilities to provide support, information, and resources.
Cerebral Palsy Guide https://www.cerebralpalsyguide.com/community/parents-caregivers/
Overview: The Cerebral Palsy Guide is a nonprofit organization dedicated to providing comprehensive information, resources, and support for individuals and families affected by cerebral palsy. They offer guidance on treatment options, therapies, financial assistance, legal rights, and advocacy. Their goal is to empower individuals with CP to lead fulfilling lives and navigate the challenges associated with the condition.
National Down Syndrome Congress (NDSC): https://www.ndsccenter.org/
Overview: The National Down Syndrome Congress (NDSC) is a nonprofit organization that provides support, information, and advocacy for individuals with Down syndrome and their families. NDSC offers resources such as educational materials, webinars, conferences, and a helpline. They also advocate for policies and legislation that promote the rights and inclusion of individuals with Down syndrome at the national level.
National Down Syndrome Society (NDSS): https://www.ndss.org/
Overview: The National Down Syndrome Society (NDSS) is a nonprofit organization that works to promote the inclusion, acceptance, and empowerment of individuals with Down syndrome. NDSS offers resources such as educational materials, webinars, advocacy toolkits, and a helpline. They also organize events and campaigns to raise awareness and support research initiatives related to Down syndrome.
Mesothelioma Veterans Center: https://www.mesotheliomaveterans.org
Overview: The Mesothelioma Veterans Center (MVC) is dedicated to supporting veterans who have been exposed to asbestos during their service. As veterans account for a significant portion of mesothelioma cases due to asbestos exposure during military duty, MVC provides essential resources, including information on diagnosis, treatment options, legal assistance, and emotional support. Through advocacy, education, and counseling, MVC strives to ensure veterans receive the care and compensation they deserve. Join us in our mission to assist those who have served our country.